Clinical trials are studies to test new drugs, already approved drugs, devices, or other forms of treatments such as radiation. Given the limited effectiveness of chemotherapy in ACC, medical oncologists might suggest a clinical trial involving targeted drugs and/or immunotherapy.
Patients should discuss the scientific reasoning of any drug and the availability of drugs within or outside their medical center. Most clinical trials are often found at comprehensive cancer centers and each medical institution may have different trials available. Usually, clinical trials are conducted by government health agencies such as NIH, researchers affiliated with a hospital or university medical program, independent researchers, or private industry. In some cases, if a clinical trial is closed or not available, with the guidance of their doctor, a patient may be offered the treatment outside of a clinical trial.
Phases of clinical trials
Phase I clinical trials: Is the treatment safe?
Phase II clinical trials: Does the treatment work?
Phase III clinical trials: Is it better than what’s already available?
Sponsorship, Costs and Insurance Coverage
Where to get information about current clinical trials
The National Institute of Health (NIH) provides the most definitive list of clinical trials around the world. To use their online search tool simply focus your search by typing ‘adenoid cystic carcinoma’ when visiting https://clinicaltrials.gov.
You can ask for help with a search by calling 1-800-4-CANCER (1-800-422-6237).
The National Cancer Institute also provides general information about clinical trials here https://www.cancer.gov/about-cancer/treatment/clinical-trials
For information about clinical trials conducted in Europe
For information about clinical trials conducted in the UK
For information about ACC clinical trials for those with progressive disease. This website may not list all the pertinent and available trials. https://accrf.org/treatments/clinical-trials/open-studies/
Clinical trials sponsored by private sources can be found here: