Give to ACCOI
When you give to ACCOI, you are supporting an organization whose mission is to support patients, caregivers and families impacted by Adenoid Cystic Carcinoma (ACC). This disease can take alot but through your support, we can give more to those in need.
You can give to ACCOI in honor of someone you love, through planned giving (legacy gift) or by spreading awareness through a Facebook fundraiser. Thinking of another way or have questions, please email [email protected].
All US donations to ACCOI are tax-deductible. Our federal tax ID number is 71-0916234.
Ways to Donate
If you submit a check for a donation to the ACCOI, you will receive an acknowledgment letter with tax ID number which can be used for tax deduction purposes. Your donation may be made in memory of or in honor of an individual. We will send a personalized letter to the survivor you specify for a memorial gift or to the person you wish to honor. Please include the name and address of the person to whom you are paying tribute and the name and mailing address of the person who should receive acknowledgment of your gift. Also, include your mailing address so we can send you a receipt.
Tax-deductible donations to ACCOI can be mailed to the following address:
Adenoid Cystic Carcinoma Organization International
P.O. Box 936
Lake Forest, CA 92630
Double or even triple your donation! Contact your company’s Human Resources department to inquire about a ‘Matching Gift’ program. Your company will handle all the processing. If your company needs more information, please provide our email at [email protected] or toll free phone number (888) 223-7983
Create an ACCOI Facebook Fundraiser to celebrate a birthday, cancerversary, special day (Mothers/Fathers Day) or milestone. (Don’t forget to tag ACCOI – we will share your fundraiser on our page)
How to create a nonprofit fundraiser on Facebook
- Log into Facebook
- On the left column, click Fundraisers (Tip: If you don’t see Fundraisers on the left, then click See more.)
- On the left, click Raise money.
- Click Nonprofit and search Adenoid Cystic Carcinoma Organization International or ACCOI
- On the left, enter:
The goal amount of money you want to raise
- The currency you want the funds to be in
- Click Create.
- You’ll see a screen pop up where you can invite your friends to donate to your fundraiser, share your fundraiser in your feed, or donate to the fundraiser yourself.
ACC patients with an upcoming surgery can make a large impact by donating a part of their tumor for ACC research. It’s free and will not interfere with treatment.
Several major cancer centers have active ACC research programs that freeze and maintain large biorepositories of banked tumor specimens. These specimens may be used to create research models (cell cultures and mouse models), undertake sophisticated genomic studies and/or determine relationships between tumor profiles and treatment outcomes. If you’re considering a tumor donation through surgery, ask your surgeon for the necessary information.
If your surgeon cannot help you, there are alternatives for getting your tumor to researchers working on ACC.
- Pattern.org [For patients in the US] Samples donated via Pattern.org will be sent to the MD Anderson Cancer Center where they will become part of the Rare Tumor Profiling Initiative. Once a patient provides consent, Pattern.org arranges for excess tissue to be shipped to a research lab. They will work with your medical center. Currently, only patients being treated at institutions in the United States are eligible. Older tumor blocks and slides are not being sought, only fresh surgical specimens. Simply, visit Pattern.org to learn more about the project and access an electronic consent form. The process is easy, free and will not interfere with your treatment.
Manchester Cancer Research Centre Biobank [For patients in the UK] The Christie Hospital in Manchester, UK, is a reference center for patients with adenoid cystic carcinoma. Through the affiliated Manchester Cancer Centre Biobank, all ACC patients in the UK are eligible to have their tumor specimens collected, maintained and analyzed for research purposes (even if not primarily followed by a consultant in Manchester). However, to become eligible, patients must have at least one visit with Dr. Robert Metcalf, a consultant Head and Neck Cancer Medical Oncologist at the Christie Hospital. Interested patients may contact Jennifer Hill at [email protected]. For more information, visit HERE.